The Circle of Good Foundation will buy the most expensive drug for six children with SMA

The Foundation for the Support of Children with Dangerous and Chronic Diseases “Circle of Good”will purchase the world’s most expensive drug “Zolgensma” for six children with spinal muscular atrophy (SMA). This is reported by the TV channel “360”.

It is noted that at the end of July, when the first meeting was held to review applications, the purchase of the drug was approved only for two children. As explained in the fund, this is due to uncertainty with the date of the start of deliveries of the drug.

The chairman of the Board of the Circle of Good, Alexander Tkachenko, noted that every month is important in the treatment of this disease. According to him, it is irresponsible to prescribe medication without knowing the start date of deliveries.

Currently, the contract for the purchase of the drug has been signed.

The Circle of Good was created by the decree of the President of the Russian Federation on January 5, 2021. The main source of funding is 2% of the personal income tax for individuals and organizations whose income is more than 5 million rubles a year, as well as voluntary donations. As the government recently noted, the support of the foundation allowed more than 1,000 children to receive expensive treatment.

Earlier АиФ.ги he told why the drug “Zolgensma” costs over 100 million rubles and what other drugs are considered among the most expensive in the world.

Источник aif.ru

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